My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Wednesday, June 16, 2010

Walking

Today I decided I didn't want to use my wheelchair, or my walker. I simply walked all by myself to the bathroom, then outside. Now I'm going to go upstairs and take a shower, like a real person does.

Oh did I mention the walking and the going upstairs part!

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2 comments:

  1. CynthiaJune 16, 2010 at 1:49 PM

    It's amazing how having surgery or being sick can make us not feel like a person but as something else altogether. I'm glad you're feeling better and back into your personhood!

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  2. AnonymousJune 16, 2010 at 3:18 PM

    I'm surprised to hear you are walking(like a real person), and so happy to hear you are doing so well. Hope you can find out what you are allergic to. Also glad you are getting off the pain pills.

    Love Ama Jo

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