My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Friday, July 2, 2010

Uncomfortable

I’m defiantly feeling better, which is good. I’m not in as much pain anymore; it’s more of just soreness, which is also good. But, as I start to feel better lying in bed all day gets very uncomfortable. It’s still uncomfortable to sit in my wheelchair for long periods of time (over an hour) so it’s beginning to be a little bit of a catch 22, as it seems many of my medical adventures turn into. I’m hoping that in the next days I’ll be able to sit longer, which would allow me to do more.

Last night I was able to roll over to my non-operative side, which has been all I wanted to do. It might seems like a lame accomplishment to all you healthy movers out there, but let me just tell you, it is a pretty big deal for me.

I have an appointment in clinic a week from today. I’ll get my stitches out and such. It will be two weeks post-op, so I’ll be halfway done, well at least half way done with non-weight bearing, my recovery will be much long than just a month. My stitches seem to be healing very well, but I still have the rash all around my incision. Keeping up the Benadryl.

2 comments:

  1. Nice upgrade to the blog. Keep moving a little each day and life will get better. YOLO. Happy 4th of July and we look forward to more news. Take care, Gary and Barb.

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  2. So glad you keep improving. I think you will recover completely in three weeks. Expect the best.

    Love Ama Jo

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