My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Friday, July 16, 2010

Thursday's Appointment

I went to see my hip surgeon on Thursday to clear things up and talk with him before he goes on his 3 month fellowship in Colorado. He's studying with on of the best hip surgeons, so maybe he'll have some new tricks for me when he gets back.

I'm still non-weight bearing until next week. After that I can start walking as much as I want and am comfortable with. I'm starting PT and water therapy on Wednesday. I'm going to have regular PT first (30 mins), then water therapy (30 mins). After Thursday my only restriction is no active abduction, other than that I'm pretty much free.

I got back to clinic in another 2 weeks to have some x-rays and another check-up. This appointment will be with the PA (Physician's Assistant) since my surgeon will be gone.

We decided that my next hip (left) is going to be a combined surgery instead of 2 separate ones. I'm scheduled to have it done on December 14th. It should be easier because I should be able to use crutches by then, assuming that my right hip (and knee) are stable enough to support me. If I can use crutches I'm going to get the Mellennial In-Motion Pro crutches (http://www.millennialmedical.com), They take the stress of of your shoulders and wrists, major concern with EDS. They also have shocks at the foot and they fold up so it's easy to travel with them.

I'm very excited to start PT again, and especially water therapy.



1 comment:

  1. Glad to hear your appointment went well. Is your OS by any chance doing his fellowship with Dr. Philippon at the Steadman Hawkins Clinic?

    ReplyDelete