My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Thursday, July 15, 2010

A Little Update

I’ve started sleeping upstairs. My dad moved my bed back upstairs the other day. It’s nice to be back in my room and it feels like I’m getting back into the swing of things.

I’m starting water PT next week (Wednesday). I’m going to do 30 minutes of land PT, then 30 minutes of water PT. I’ll most likely be walking in the water and very simple exercises at first. My goal is to eventually be able to use the water and swimming as my exercise, doing lap swimming a while down the road. With EDS it’s important to keep your strength up, swimming is an excellent way to do this because it’s non-impact and unloads your joints.

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