My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Thursday, March 3, 2011

Physical Therapy

I went to PT today and things went pretty well.

There's not a whole lot I can do now, but I was able to do what I needed to do. I did some quad sets, which my therapist was surprised I had as much strength as I did. It wasn't great, and it's defiantly atrophied from surgery, but since I usually have a hard time turning on my quad post-op it's a good sign. I also did some glute sets and TAs (lower ab contractions) to keep up my core strength. Lastly, I did some flexion to work on my range of motion (ROM). This was the first time that I bent my knee at all. It wasn't painful necessarily, but my knee is very tight since I haven't really moved it for two and a half weeks. I was able to get to 16 degrees of flexion, my restriction is at 30 degrees right now. Because of EDS I don't have to push the flexion too much because being loose is not an issue for me, even if I wanted to I don't tighten up.

It seems like I'm finally turning the corner. I'm still on my medicine every 5 hours, and at least today, I'm not able to stretch that out another hour. It's getting a little easier to move around, although I still need a lot of help and I can't really be left alone yet, I can see the light at the end of the tunnel.

3 comments:

  1. New to your blog. Good to hear that things are improving.

    Best,
    Hua
    healthcentral.com

    ReplyDelete
  2. Good news Madeline. Am sure you will see improvement every day.


    Love Ama Jo

    ReplyDelete
  3. Exercise, Exercise does the body good. Take care. Barb and Gary

    ReplyDelete