My Journey with Ehlers-Danlos Syndrome
"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."
- Little Bee by Chris Cleave
Thursday, March 31, 2011
EDS and Physical Therapy
Yesterday my physical therapist told me he was writing a report on the top 10 most challenging disorders to work with in physical therapy. Because of me and lovely EDS, he added Ehlers-Danlos Syndrome to that list.
Today I have multiple appointments. I'm going to my PA to have my incision checked, then off to physical therapy again. Then I'm going to my compounding pharmacist to figure out some abnormal levels I have from when I got a ton of blood work done before my December hip surgery.