My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Monday, December 27, 2010

Update

I'm not taking anymore narcotics, which is a big step. I'm feeling more like myself, also good but it makes not being able to walk more annoying. Even though my hip isn't hurting so much anymore it's still uncomfortable to sit up in my wheel chair. The couch is a little more comfortable, but my bed is still the most comfortable. I have to be careful and plan out my days according to when I need to be up in my wheel chair and make sure I'm not making myself do too much sitting. Needless to say, I'm ready to start walking, although I have quite a while before I'm actually able to do that.

I have another PT appointment tomorrow. Then Thursday I'm having my stitches removed, then more PT (this time with my regular guy).

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