My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Friday, February 18, 2011

Update

There's not much to update on. My pain is still the same and it's still quite uncomfortable to move. I haven't gotten out of bed at all today, which isn't such a bad thing. I keep my leg elevated, but after a while (a couple hours) it gets uncomfortable in the same position, so someone has to move it around for me. I've been able to drink more today, which is good to try avoiding passing out. I've been able to eat a little bit, some crackers and soup mainly but not "real food" yet. As long as I can keep on top of staying hydrated we don't have to be too concerned with the eating part.

I'm going to see my PT next Friday (I think) to mainly check in with the rest of my body and make sure I'm not loosing too much strength everywhere else.
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