My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Saturday, April 2, 2011

No More Brace.

No more brace, well at least not 100% of the time anymore. I stopped wearing the brace around the house and now I'm allowed to go out without it on. It's nice because my knee brace is gigantic and after almost 7 weeks of it, I'm sick of it. Since I haven't been walking much without my brace, I think I'm going to wear it at school for the next few days just until I feel more stable and until I can walk a little better. I walk much slower without my brace on. Also, wearing the brace is not only good for me, but reminds everyone around me of my knee. So I think it would be smart to keep it on for longer walking trips or more crowded areas, like school. I've come this far, and I'm not going to let not wearing my brace make me take steps back.

Good news PT wise. This past week I went to PT two days in a row, just because that's how scheduling worked out. I think it really helped, weather it was the fact I went two days back to back or if it's just a coincidence. My right (operative side) quad and left glute are really sore. Now, I imagine the majority who are reading this are thinking that's not a good thing. You're right, it's a great thing. Having sore muscles means that they're finally turning back on, it means that the new exercises I've been working on are actually targeting the correct muscle groups. It's a good step in the right direction.

1 comment:

  1. Thus the saying, "No pain, no gain". Glad to hear the brace is becoming optional and PT is working muscles. Keep going and so will we.
    Love, Gary and Barb

    ReplyDelete