My Journey with Ehlers-Danlos Syndrome

"On the girl's brown legs there were many small white scars. I was thinking, do those scars cover the whole of you, like the stars and the moons on your dress? I thought that would be pretty too, and I ask you right here please to agree with me that a scar is never ugly. That is what the scar makers want us to think. But you and I, we must make an agreement to defy them. We must see all scars as beauty. Okay? This will be our secret. Because take it from me, a scar does not form on the dying. A scar means, I survived."

- Little Bee by Chris Cleave

Sunday, May 22, 2011

Back & Blood Pressure

This has been a very busy past couple weeks!

My back continues to get worse. It's now constantly bothering me and I haven't really found anything that relieves it. We're backing down a lot in PT to try to allow my back to calm down, but it's hard to back down too much because the rest of my body needs to strengthen to keep up with my recovery. My PT has been doing some manuel work to try to relieve my SI joints (lower back) and re-align things. That seems to be helping a little bit.

Now, for a totally different, non-joint related topic...high blood pressure.

I've discovered that I've been having high blood pressure. Right now I'm keeping a log of my BP, as we try to figure out what's going on. The interesting thing with my having high blood pressure is that EDS patients usually have low blood pressure if anything. The systolic blood pressure (bigger, first number in a BP reading) deals with the elasticity in your vessels. Having EDS, there is thought to be more elasticity than normal, that's the problem with EDS things are too loose. Well, my BP readings don't match that thinking. I'm going to see my family doctor to see if we can figure this out.

Minus the back and BP, I'm feeling really pretty good. My knees and hips are pretty much right on track. The original goal was to stop with PT this summer, so we're hoping I can stay on that track.

1 comment:

  1. Hi and thanks for this unique ideal blog post. Sorry about the back pain, I have too, but mine is at it's start so not so bad yet. Risk factors for high blood pressure include taking stress, smoking, obesity, lack of exercise and genes.

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